Physical well-being and School Performance in Children with Thalassemia in Mosul City
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Physical well-being,, School performance, Children, Thalassemia.
Abstract
Objectives: This study aimed at assess physical well-being and school performance for children with thalassemia .And to find out the association between some demographic characteristics and physical well-being and school performance.
Methodology: A cross-sectional survey of (101) thalassemic children between the age of (3-12 ) years who received treatment at Al-Hadbaa Specialist Hospital for ,Mosul City, Iraq for the period from 1st November 2023 to 5th January 2024.physical well-being and school performance were assessed by utilizing the version 4.0 of the Pediatric Quality of Life (PedsQL) Generic Core Scale questionnaire.
Results: The result of the study showed that the majority of the participants was the age group (9-12) and (50.5%)of the study sample was female .Over half (65.3%) of patient have family history of thalassemia .The highest percentage of patients (59.4%) received three weekly blood transfusions. The general mean for physical well-being and school performance was 2.063 and 1.86, respectively
Conclusion: The present study indicates that thalassemia children has a moderate physical well-being and a good school performance.
Recommendations: The study recommended providing programs that educate parents about thalassemia to improve their understanding of managing thalassemia. The dissemination of knowledge regarding thalassemia and its mode of transmission should be emphasized by the media.
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References
Kelly N. Thalassemia. Pediatrics in review. 2012 Sep 1;33(9):434-5.
Shafique F, Ali S, Almansouri T, Van Eeden F, Shafi N, Khalid M, Khawaja S, Andleeb S. Thalassemia, a human blood disorder. Brazilian Journal of Biology. 2021 Sep 3;83.
Higgs DR, Engel JD, Stamatoyannopoulos G. Thalassaemia. The lancet. 2012 Jan 28;379(9813):373-83.
4.Safdar S, Mirbahar A, Sheikh MA, Taseer IU, Mustafa A, Ali Z, Bashir F, Firdous R, Akhtar T. Economic Burden of Thalassemia on Parents of Thalassemic Children: A Multi-Centre Study. Pakistan Journal of Medical Research. 2017 Jul 1;56(3).
Kim S, Tridane A. Thalassemia in the United Arab Emirates: why it can be prevented but not eradicated. PloS one. 2017 Jan 30;12(1): e0170485.
Nurhidayah I. Quality of Life of Preschool-Age Children with Thalassemia Major. NURSING JOURNAL. 2022 Oct;8(2).
Mardhiyah A, Mediani HS, Panduragan SL, Yosep I, Lindayani L. Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia. Open Access Macedonian Journal of Medical Sciences. 2022 Jul 8;10(G):667-73.
Telfer P, Constantinidou G, Andreou P, Christou S, Modell B, Angastiniotis M. Quality of life in thalassemia. Annals of the New York Academy of Sciences. 2005 Nov;1054(1):273-82.
9.Koutelekos J, Haliasos N. Depression and Thalassemia in children, adolescents and adults. Health science journal. 2013 Jul 1;7(3):239.
Cao A, Galanello R. Beta-thalassemia. Genetics in medicine. 2010 Feb 1;12(2):61-76.
Modell B, Darlison M. Global epidemiology of haemoglobin disorders and derived service indicators. Bulletin of the World Health Organization. 2008 Jun;86(6):480-7.
Borgna-Pignatti CA, Rugolotto SI, De Stefano P, Zhao HU, Cappellini MD, Del Vecchio GC, Romeo MA, Forni GL, Gamberini MR, Ghilardi R, Piga A. Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine. haematologica. 2004 Jan 1;89(10):1187-93.
Hadeel AI, Mea’ad KH, Ahmed BA. Health-related quality of life in children and adolescents with β-thalassemia major on different iron chelators in Basra, Iraq. Journal of pediatric hematology/oncology. 2016 Oct 1;38(7):503-11.
Kahtan H, Salma KJ, Al Ebrahimy AA. Psychosocial Aspects of School Age Children with Thalassemia Major in Al-Najaf Al-Ashraf. kufa Journal for Nursing sciences. 2016 Apr 25;6(1):26-34.
15.Mansoor S, Othman Z, Othman A, Husain M. A descriptive study on quality of life among adolescents with beta-thalassemia major in the Maldives. International Medical Journal. 2018 Aug 1;25(4):211-4
Ayoub MD, Radi SA, Azab AM, Abulaban AA, Balkhoyor AH, Bedair SE, Aljaouni SK, Kari JA. Quality of life among children with beta-thalassemia major treated in Western Saudi Arabia. Saudi Med J. 2013 Dec 1;34(12):1281-6.
Hossain MJ, Islam MW, Munni UR, Gulshan R, Mukta SA, Miah MS, Sultana S, Karmakar M, Ferdous J, Islam MA. Health-related quality of life among thalassemia patients in Bangladesh using the SF-36 questionnaire. Scientific Reports. 2023 May 12;13(1):7734.
Tuysuz G, Tayfun F. Health-related quality of life and its predictors among transfusion-dependent thalassemia patients. Journal of pediatric hematology/oncology. 2017 Jul 1;39(5):332-6.
Benedetto D, Rao CM, Cefalu C, Aguglia DO, Cattadori G, D’Ascola DG, Benedetto FA, Agostoni P, Sciomer S. Effects of blood transfusion on exercise capacity in thalassemia major patients. PLoS One. 2015 May 26;10(5):e0127553.
Fung EB, Pinal J, Leason M. Reduced physical activity patterns in patients with thalassemia compared to healthy controls. Journal of Hematology and Oncology Research. 2015 Dec 10;2(1):7-21.
Siddiqui SH, Ishtiaq R, Sajid F, Sajid R. Quality of life in patients with thalassemia major in a developing country. JCPSP: Journal of the College of Physicians and Surgeons--Pakistan. 2014;24(7):477.
Mahmoud MM, Helaly NM, Mohammed AA, Kamal MY. Quality Of Life of Children with Thalassemia in Alexandria. Alexandria Scientific Nursing Journal. 2019 Jul 1;21(1):69-80.
Mikael NA, Al-Allawi NA. Factors affecting quality of life in children and adolescents with thalassemia in Iraqi Kurdistan. Saudi medical journal. 2018 Aug;39(8):799.
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